Parents supporting parents

DCD Kids is a parent-run organisation raising awareness of DCD and advocating for better support in the education system and the wider community. 

We bridge the gap between academic research and lived experience with helpful resources and personal stories to support parents in navigating a DCD diagnosis and beyond. 

Through awareness, advocacy and action, we’re working together to help children reach their full potential and live happy and fulfilling lives.

Meet Sue, parent and founder

Hi, I'm Sue, the founder of DCD Kids and, most importantly, a parent to a wonderful child with Developmental Coordination Disorder (DCD).

My family’s experience with DCD began when my son was a baby. He was missing developmental milestones. When we voiced our concerns, the doctors ruled out other conditions and sent us on our way, leaving us wondering what to do next. 

At the end of our son’s kindergarten year (three full years later), we sought help from an occupational therapist to address our concerns about handwriting. She suggested we look into Developmental Coordination Disorder (DCD). 

When I read the list of symptoms, it clicked – they perfectly described our son's struggles with fine and gross motor skills. Finally, an answer! After further testing with the occupational therapist, we received an official diagnosis from a paediatrician.

While I felt profound relief initially, it didn't take long to feel demoralised again. I was on my own, trying to cobble together different resources and therapies with little knowledge of what would work best.

I found valuable research, but little was written by parents for parents. I wanted to read something about how DCD impacted families daily and how they overcame the challenges. I realised other parents probably felt the same – frustrated and forced to deal with the diagnosis alone.

This was the beginning of DCD Kids. I wanted to create a place where parents could find helpful resources and connect with others who understand what they're going through – the place I needed when our family first learned about DCD.

Since starting DCD Kids in 2020, I've connected with other parents who, like me, know their kids are so much more than a DCD diagnosis. Their children are kind, funny, and resilient, and while their challenges don't define them, they deserve proper support. 

Currently, finding support for DCD is too complicated and underfunded. We’re working to change that for our kids and fellow parents about to embark on the DCD journey. 

Together, we're working to raise awareness and advocate for change so children with DCD can find the support they need and live happy lives.

Our mission

Raising awareness of DCD by bridging the gap between research and lived experience and advocating for better support so children with DCD can reach their full potential.

Our vision

To create a future where children with DCD are understood, supported, and empowered. Where DCD is recognised as a whole-life-affecting condition, where educators and institutions provide comprehensive support, and where every child can realise their potential.

Raising awareness and advocating for better support

Only through awareness of DCD and its impacts on our children can we advocate for meaningful change. We focus our actions on helping kids achieve their highest potential.

We raise awareness by making research accessible and building a community of compassionate parents who share information and support each other.

AWARENESS

ADVOCACY

DCD Kids advocates for more awareness of DCD in schools and the wider community and helps educators and coaches understand how to help children with DCD thrive.

We take action by partnering with researchers and contributing to evidence-based studies. DCD Kids looks for opportunities to share our message.

ACTION

We celebrate what our advocacy achieves and the inclusive community we’re creating. We share what our resilient children achieve.

ACHIEVEMENT

Stay informed and get support

Get the latest DCD research and actionable strategies to support your child. Join our community of compassionate parents!